Page 1: Project information
ON-LINE Questionnaire Study
From diagnosis to today: Understanding the patient journey in neurological conditions
To find out more about the study, please continue reading below.
Understanding adjustment in neurological conditions - Online Questionnaire Study
PARTICIPANT INFORMATION SHEET
Study aims - We are looking to explore participants’ perspectives of people living with various neurological conditions to better understand adjustment to diagnosis and the role of psychological support in patient journey.
Why have I been contacted? - We have contacted you because you are living with a neurological condition, and we would like to know about your experiences of living with your diagnosis.
What does taking part involve? - This is an online questionnaire study about your wellbeing, experience of living with your diagnosis over time, as well as your thoughts about psychological support. The questions will take about 30 minutes to complete.
Do I have to take part? - No, it’s entirely up to you. Taking part in this study is online completely voluntary; you may decide to stop at any time without giving a reason.
Potential benefits - This study does not provide a direct benefit to you as it seeks to understand the patient experience.
Potential disadvantages - There are very minimal risks in this online questionnaire study. There may be questions that you may not wish to engage with. These may be skipped over or you could stop at any time.
Who do I contact if I have concerns with this study? - If you have any concerns you may contact the principal investigator of the study Dr Aileen Ho (a.k.ho@reading.ac.uk; 0118 378 5550).
How will my data be kept confidential? - This is an anonymously completed questionnaire. All responses are confidential and stored securely with access only to the principal investigator and research team.
Please feel free to ask any questions that you may have about this study by contacting Dr Aileen Ho (a.k.ho@reading.ac.uk; 0118 378 5550).
This application has been reviewed by the University Research Ethics Committee and has been given a favourable ethical opinion for conduct.
Thank you for your help.
1.1.
I have received and read a copy of the Participants Information Sheet for the above study
and have had sufficient time to consider this.
Required
a.1.a.
I have had the opportunity to ask questions which have been answered to my satisfaction.
Required
b.1.b.
I understand that my personal details will be kept secure and confidential by the research team at Reading University.
Required
c.1.c.
I understand that my details will be kept for a minimum of 5 years in line with University archiving policies.
Required
d.1.d.
I understand that my involvement in the above study is voluntary and that I can withdraw at any time without giving a reason.
.
Required
e.1.e.
I agree to take part in the above study
Required
2.2.
If you have read and understood the study information above and would like to participate in this online survey, please select the ‘Yes’ option below to proceed.
Required